ALS Dan Toch
Garmt is experiencing ALS – so you don’t have to!
Blog
De meest recente verhaaltjes van Garmt
Book
Van papier, tastbaar, brandbaar, wow!
Join the fight
Doe mee met ALS schoppen
Whowhathow
Wie ben ik en alles wat nergens anders past
We must have been the only tourists ever to go to Japan to stay in the hotel that Bill and Scarlett stayed in in that one movie. You see the weirdest things on TV. The hilarious part is that not one single non-Dutch person (them being the socalled target audience for this post) would know that I am referring to footage of our holiday that a million Dutch people saw on tv. Anyway. While you’re waiting for the next blog (which, incidentally, is going to be very long (the blog, not the wait)), I thought I would share a few updates about the book.
First of all, English readers, rejoice! The book did well enough to warrant the effort of a translation!
Second, despite all the work that went into creating the companion page for the book, where you will find a.o. the Spotify playlists, exactly two people visited the page thus far.
Third, did you know this blog got its title from a poem by Menko? Try translating poetry, or try finding an English title for the book. Impossible! Luckily we specialize in the impossible. Here is the translated poem:
Even if you know there’s less time ahead of you.
Even if this is all that remains, all you can confront, without fear.
Even if you have the courage to live on, to kiss and be kissed. Every single day.
Even if that’s what life has in store for you,
Then so be it.
Even with ALS.
Which also brings us to the English title: Even with ALS. Thank you, Marjan.
Full story
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Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).
There are a few ways you can help out with a small donation:
Henrik has joined the ride to defeat ALS. You can help out by sponsoring him.
The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.
Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.
Are you participating in a something, or do you know a good cause? Mail Garmt on [xyz-ihs snippet=”mailto”] or use the contact form.
My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.
Fill it out and just press send.