ALS Dan Toch
Garmt is experiencing ALS – so you don’t have to!
Blog
De meest recente verhaaltjes van Garmt
Book
Van papier, tastbaar, brandbaar, wow!
Join the fight
Doe mee met ALS schoppen
Whowhathow
Wie ben ik en alles wat nergens anders past
and that's the way it is. The '97 remix, of course, with those cool dancers in the clip, the first time I saw a remix announced as "original artist vs remix guy", Run DMC vs Jason Nevins. That's the reason for picking this song, "versus". Today's match: Amsterdam vs Utrecht.
Amsterdam.
Monday afternoon. City center Amsterdam. I am in a rush, late for a wedding. Run up the stairs, slip and hit my head. Later on at the hospital they will put me together with superglue – I'm not joking, they use the same stuff you make model airplanes with instead of stitches. But that's later – right now I scream, I feel my head, and I scream, loud and urgent, and as I am screaming I realize that I normally never scream this long or loud, so I deduct that I am apparently screaming for help, from the people I saw just now. I glance around, they see me bleeding, they walk on. I struggle to my feet and exit the parking garage that I was in. I stand there for a while, in a busy street, trying not to bleed on my suit. Nobody helps me. I ask someone for a piece of paper. They hand me a used kleenex with an outstretched arm. This suit is too expensive to mistake me for a beggar, what's going on? I try to walk but I have to sit. I phone a colleague to help me, I sit bleeding some more, finally one Japanese woman comes over, concerned, hands me paper towels and leaves. I phone Iris and break down – I cry and ask her to come get me.
Later on I faint, right in front of the groom and learn that it's really bad luck to lie flat on the ground at a Chinese wedding. Pocket that tip people, you don't want to piss off a room full of people who were supposed to have a party.
Utrecht.
Thursday mid-morning. City center Utrecht. I am not in a rush, I'm riding my bike, wearing really tight G-star pants that are so impractical but hey I got to look good for all my peeps out there or insert some random rap lyric here, damn it's a nice day out, look at the sun, where was I – right, I wasn't paying attention so I topple over because my pants are so tight I can't stick out my leg far enough to catch myself. I am origami right in the middle of the street and trying to stand up, which isn't working, because my arms aren't strong enough to lift me. Push-up count: 0. Within seconds – concerned people everywhere. Someone lifts my bag, someone helps me up, two people are recommending me to take vitamins (wtf?). One guy loudly proclaims that I'm drunk, and I take a mental reminder to have cards printed that say "I'm not crazy or drunk, I just have ALS" because explaining it on a busy street is quite a challenge with this voice. I thank everyone profusely, decline the offers for a seat or water or a ride home (I have an appointment with a British French guy to go to in just a few minutes and I don't want to be LATE) so I straggle to the sidewalk and take some time to catch my breath and eat a banana because that's better than smoking a cigarette.
Five minutes later I have caught my breath and a cute couple that has been watching comes up to me. They will walk with me to wherever I need to go and they will carry my bike. Arrived at my destination the woman has tears in her beautiful eyes and the guy, inked from toe to nose-tip, says "I may have tattoos, but dude, you gave me such a scare, I feel for you, I had to help you". I'm even in time for my meeting.
Amsterdam – Utrecht: 0-1.
Full story
Adipiscing hac imperdiet suspendisse ullamcorper imperdiet platea a lectus metus non a neque ut placerat sed dis netus a a hac primis in facilisi scelerisque. Luctus scelerisque vestibulum mi conubia integer a eget purus ullamcorper proin parturient maecenas nulla elementum euismod condimentum curabitur. A vivamus primis dapibus praesent nostra in ut volutpat netus suspendisse vivamus elementum morbi nec quam laoreet fermentum netus eget tortor adipiscing accumsan mi nulla eleifend ornare lectus lectus. Augue neque a a rutrum nam a placerat a lorem a ullamcorper at nam quisque leo sodales nibh erat molestie ut taciti.
Purus quam taciti fames aenean class fringilla ad curae at posuere a elit consectetur a senectus odio a scelerisque justo sapien condimentum elit cursus a adipiscing. Suscipit a donec viverra eu quis mus pretium suspendisse nec eros eu lacinia a lacus sit facilisi conubia congue velit. Inceptos ligula parturient ultrices facilisi scelerisque massa neque est vehicula torquent tincidunt praesent ut nostra a adipiscing nisi ac ultrices ut ridiculus ac cum bibendum ullamcorper.
Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).
There are a few ways you can help out with a small donation:
Henrik has joined the ride to defeat ALS. You can help out by sponsoring him.
The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.
Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.
Are you participating in a something, or do you know a good cause? Mail Garmt on [xyz-ihs snippet=”mailto”] or use the contact form.
My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.
Fill it out and just press send.