ALS Dan Toch
Garmt is experiencing ALS – so you don’t have to!
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Metis is my 7-year old nephew from New Zealand. His voice is calling out the numbers as the steadily ascending needle of my speedometer passes them – 100, 110, 120, …, it moves from “fast” to “ludicrous” into “unspeakable”. Metis, the first sensible male younger than 18 to share my enthusiasm of BMW’s. Apparently he first didn’t care about cars at all – and then he heard the sound of six German cylinders revving their way into an adrenalin rush. So we love each other and together we love my car. He’s smiling next to me as I push even faster – the road is empty enough and we go past “unspeakable” into almost creating a sonic boom. The audi Q7 behind us sticks remarkably close and one minute later Metis is patiently explaining the second police officer that grass is always green in New Zealand while I am going through my trunk with the first police officer, looking for registration papers. That guy knows his movies – he quotes Intouchables. He can’t take away my driver’s license as I don’t have it on me. He agrees that 7-year old nephews need to be shown just how fast a BMW can go and a short while later I drive on, without a fine, with a stupid grin that I’m trying to suppress and a recommendation on where to go in Germany next time. I tell Metis: “It’s because you’re such a good kid that they let us off!”. He knows better: “No. It’s because of the ALS and because he likes New Zealand”. We have a nice story to tell our parents when we get home.
Full story
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Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).
There are a few ways you can help out with a small donation:
Henrik has joined the ride to defeat ALS. You can help out by sponsoring him.
The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.
Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.
Are you participating in a something, or do you know a good cause? Mail Garmt on [xyz-ihs snippet=”mailto”] or use the contact form.
My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.
Fill it out and just press send.