ALS Dan Toch
Garmt is experiencing ALS – so you don’t have to!
Blog
De meest recente verhaaltjes van Garmt
Book
Van papier, tastbaar, brandbaar, wow!
Join the fight
Doe mee met ALS schoppen
Whowhathow
Wie ben ik en alles wat nergens anders past
I'm starting to type this as I'm sitting at the beach. Lovely weather. Overlooking the see. Wedding. They are hard to enjoy these days, unfortunately. We're summoned for the pictures – E. in his suit which makes him look better than I'd like to admit, the rest of us, all nice. No problems. I ask a question to someone, get a joke as an answer, and have to try so hard not to punch that person in the face, that all I can do to help myself is just to walk away. For what? For a joke? Apparently. There's nothing wrong whatsoever with that person's response and yet… I'm drained, emotionally, of all my reserves, and try as I might it's hard not to take it out on other people. In my confusion it's like they're trying to hurt me even though it's really me hurting me through them.
Perhaps there's a reason why diaries are usually locked up and hiding underneath a bed. Or why they are associated with emotionally unstable adolescents (a pleonasm if there ever was one). Part of what I write is considered hurtful for and by some. I get requests for moderation and feedback that I'm using my disease as an excuse to say whatever I please. I´m being told to harden the fuck up. Please, Garmt, have some motherfucking consideration, act normal, will you, it´s been a month now. And -…. they´re right. Of course they are right. All my life I have known the right and the wrong decision. Each time I smoke a cigarette. Eat too much. Spend money on a three-star restaurant instead of on a charity. Yell at a friend instead of feel for him. Or more down-to-earth – I know when I am creating bad karma. Each and every tiny single bit of it, and I know beter than any and all of you that it will come back to haunt me when I need it least. So why add more now? Why continue to create bad karma? Because it takes energy? That I'm spending instead on looking for a cure which we all know IS NOT THERE or it wouldn't be called a motherfucking INCURABLE DISEASE now would it (Matthew, I'm just writing these lines to upset the profanity filter at your company), anyway, why waste energy on all these other things when I can use it to be a better person? Am I even a better person for applying censorship? Well, if I was in the other person's shoes, I would think me a better person for being considerate, for not spewing whatever comes up for the world to read (hey, 68 people on the list, and no more than a few hits, it's not the whole world, I know that, I'm not being arrogant here). I wouldn't want all thoughts other people have about me to be out there in the open, either. Right?
I'm torn – one the one hand, any and all of you who have any remote complaints about reading what I write, please feel invited to tell me to remove you from the list and to never look up the website again. You're most welcome to remove yourselves. On the other hand – I am trying to be a better person. But don't take that as a promise.
Thank you for having read chapter 1 of "how to cope with writing a personal blog". I'm sure everyone goes through this. We'll continue with chapter 2 next week.
Ah, one more thing. The pseudobulbar affect (read that link some time if you interact with me. I have it in a mild form now but it might impact how you communicate with me in the future) can account for laughing or crying but not for anger or punching someone in the face. If that happens I'm accountable for it msyelf.
Full story
Adipiscing hac imperdiet suspendisse ullamcorper imperdiet platea a lectus metus non a neque ut placerat sed dis netus a a hac primis in facilisi scelerisque. Luctus scelerisque vestibulum mi conubia integer a eget purus ullamcorper proin parturient maecenas nulla elementum euismod condimentum curabitur. A vivamus primis dapibus praesent nostra in ut volutpat netus suspendisse vivamus elementum morbi nec quam laoreet fermentum netus eget tortor adipiscing accumsan mi nulla eleifend ornare lectus lectus. Augue neque a a rutrum nam a placerat a lorem a ullamcorper at nam quisque leo sodales nibh erat molestie ut taciti.
Purus quam taciti fames aenean class fringilla ad curae at posuere a elit consectetur a senectus odio a scelerisque justo sapien condimentum elit cursus a adipiscing. Suscipit a donec viverra eu quis mus pretium suspendisse nec eros eu lacinia a lacus sit facilisi conubia congue velit. Inceptos ligula parturient ultrices facilisi scelerisque massa neque est vehicula torquent tincidunt praesent ut nostra a adipiscing nisi ac ultrices ut ridiculus ac cum bibendum ullamcorper.
Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).
There are a few ways you can help out with a small donation:
Henrik has joined the ride to defeat ALS. You can help out by sponsoring him.
The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.
Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.
Are you participating in a something, or do you know a good cause? Mail Garmt on [xyz-ihs snippet=”mailto”] or use the contact form.
My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.
Fill it out and just press send.