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Gedenkplaats

Laat een bericht achter op de gedenkplaats van Garmt:

https://www.memori.nl/gedenkplaats/garmt-van-soest/

Doneren

Geef een bijdrage om de film over Garmt te kunnen realiseren. Voor Zoë.

https://www.doneeractie.nl/garmt/-4282

ALS Dan Toch

Garmt was experiencing ALS – so you don’t have to!

Go to the English site

English visitor? Click here!

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De persoonlijke verhalen van Garmt

Book

Van papier, tastbaar, brandbaar, wow!

Join the fight

Kick ALS in the balls, doe mee!

Whowhatwhy

Wie ben ik en alles wat nergens anders past

Heb jij ook ALS? Klik hier!

Latest post

How deep is your love

06/09/2014/in English, Updates /door garmt

So John Frusciante used to play and sing that song as part of a Peppers show. Which goes to shw that even guitar geniuses can surffer from poor judgment. This is the first entry fully written and posted using eyes only.

 

Each time you go to Lowlands Festival you go for something familiar and something unexpected. I first went there, I think, in ’98?, as site crew, working backstage on odd jobs like driving trunkfulls of gaffa around or handing out rain ponchos to crew. I remember the disillusion when I went as a paid visitor for the first time; so much walking from parking to camping to mainstage to drinks, etc…

 

I got diagnosed with ALS a little over a year ago, just two weeks before the festival. Back then, nothing much was wrong except that I spoke a bit slower and I couldn’t throw my beer as far. Right now, 13 months later, I am waiting for the wheelchair to be delivered and I’m typing this text with my eyes. Temper fugit. So when my best friend Paul showed me two backstage passes for this year, I couldn’t wait to go there and carpe fucking diem. He had even called in a rare favor from his old friends at the on-site power supplier, getting us a gator.

 

So we went there and we had a blast. And the biggest unexpected thing I took away this year? Love. Everyone was so kind, so caring… I need help with a lot of things and that is usually not something busy crew is waiting for. My biggest fear is ending up as a bother to people, as an inconvenience, and not once did I feel like that, even though I constantly took time and attention from people who had a job to do. We showed up at crew catering ‘de kookvogels’, whom I worked with a few times, at the busiest time of the day, and all the chefs took time out to sit down and have a beer with us. These guys have seen ALS up close and that makes their warmth to me all the more impressive (would you want to be reminded?). I could have stayed there hugging these guys all weekend (which is slightly odd as close physical intimacy with sweaty unshaven men is not a regular hobby of mine, but I digress).

 

Later, stumbling onto the loading dock of the main stage, I was surprised again; two roadies put me on a dolly, pushed me right past the final frontier of Lowlands’ inner sanctum, yelling ‘he’s with the band!’ to get the security guard to jump out of their way. I had arrived on the back of the mainstage, right as one of the headliners were starting their set. The monitor-mixer gave me a glance and offered me the best seat in the house.

 

So much love and respect, from everyone working there, it was also reassuringly familiar that the VIP’s in the guest area ignored me alltogether; these are people who are too important to be nice, thankyouverymuch. In that same guest area we met one of the only real vip’s there; Camiel de Kruijf, without whom half the festival wouldn’t even be there. He’s a close friend of my best friend and made all of this possible for us. You don’t expect so many nice and caring people to work in the world of rock&roll, but there he is.

 

Since learning about my ALS I have tried hard to fight it; helping research (www.projectmine.com), becoming a partner in a company developing ALS drugs (www.treeway.nl), setting up an ALS investment fund (www.qurit.org)… The ice bucket challenge brings hope because it raises awareness and funds, which this fight needs. The love of my friends and strangers brings the energy to keep me alive and fighting. Thank you, Paul, and thank you, Camiel.

http://alsdantoch.com/wp-content/uploads/2016/02/ALS-dan-toch-logo2-300x138.png 0 0 garmt http://alsdantoch.com/wp-content/uploads/2016/02/ALS-dan-toch-logo2-300x138.png garmt2014-09-06 09:57:152014-09-06 09:57:15How deep is your love

Tattoo Stories Part 1

30/08/2014/in English, Guest Author, Updates /door garmt

So I almost got divorced the other day. Let me explain. Me and my best buddy Paul were in this tattoo shop in Brussels (because that's how we roll/get down/boogie/out our secret gay love triangle/start our career as Dutch national soccer players/ah hell, I guess you know what I'm going for here/because I don't really/are you still with me/I was going for… oh, right, because that's how we roll/or whatever rockstars say these days/I haven't watched MTV Cribs in ages so you just have to imagine that I am saying something cool here, with a # or something) and there was this female tattoo artist there (her customer almost ran away after he saw me fall over (it's ok, the freshly tattoo'd arm took the impact and that already hurt so it was kind of efficient), she ran after him screaming "That doesn't happen to all our customers! He just has a deadly disease!", and she got him back so I can tell the next part) who was tattooing a customer that almost ran away and then we noticed just as Paul was trying not to scream (it is amazing, our guy was so soft and sweet and small but the moment he got a needle into your flesh he was super super intense (and you try not screaming when a tattoo guy gets intense)) that she had a portrait of Tom Waits tattoo'd on her arm (we even asked "is that him?" and she said "of course, who else?") and I of course had no choice but to propose to her but I am married and I am just realizing that Iris reads this as well, so. So, we went to Brussels and got inked together and it was cool.

 

I got my first tattoo about, I think, 15 years ago. At the time, I knew only one other person who had one; my sister. The question I heard most was: "Why did you get one?" Now the first question is: "What does it mean?", and if your answer isn't philosophical enough, beware. Gone are the days where you could wake up with a hangover and an odd itch on your chest, and discover a bird or anchor there, permanently (this neary extinct cultural idiosynchracy was nicely paid homage to in the cult classic "The Hangover"). So my latest tattoo has four parts, honouring the evolution of public opinion in the western world over the past century or so (I just made that up, but it's actually quite fitting). One part was conceived years ago, marking both a milestone of sorts in my development as a zen buddhist as well as a unique artefact of the friendship between Paul and me, as well as being a joke that is understood by very few and found funny only by me. One part was conceived months ago, and narcistically is about one of the greatest compliments I received, which I want to keep reminding myself of as I think I'll need what it stands for. One part was thought up on the spot and the prettiest part was made up on the spot.

 

Maria has kindly agreed to write a guest blog about the second part, the compliment, which is the rest of this post. I would give her a proper introduction, but this paragraph took me an hour to write already, and I'm about to throw this eyegaze thing out of the window, so Maria, the floor is yours:

 

A “thank you” rather than a farewell

It was almost 4 months after the first time I met Garmt. After several “milestones” had been reached within the ALS initiatives running in the company, he wanted to organize a get-together dinner to thank all of the people that worked with him in his effort to kick ALS in the balls. It was also a bit before little Zoe would come to life, so it was a good occasion to spend some time with the whole team, before he would take some time off to focus on his most valuable team, his family. And so, his favorite restaurant in Utrecht got reserved for the whole night, we (the “company team”) arrived around dinner time and the wine started coming smiley

 

What Garmt didn’t know beforehand, however, was that we also wanted to prepare something for him and, as the Dutch saying goes, put him in the spotlight (still not quite sure that he didn’t know, though – this guy seems to know everything going on around his teams). The plan was to make a piece of art on-the-spot for him. The idea was that each of us had a word or expression in mind that best describes Garmt. Our task was to *somehow* describe all these thoughts on a paper/artistic way and put them all together in a mobile that Garmt could take with him. Keep in mind that we are talking about business people that were asked to create art, and you can get a picture of how the “describing” part went; colors all over the place, glue around tables, and engineers wondering what is the best way to glue a candle on a horizontal position (true story, don’t ask). But, behind all of these improvisation efforts, there was something that all art in the world could not express clearly enough, and this were the concepts that people came up with to describe Garmt.

 

So this is why you are reading this post right now. When Garmt asked me to make this blog post for him, it was because he wanted to make sure he can remember all these words that people said about him and the meaning behind them. So I will be as analytic as possible about describing the word that I used, even though I know that generally he would insist that it’s best to say things in short points.

 

The word that I think of when I think of Garmt is the Greek word “θάρρος” (thárros). It is not easy to translate it in just one term, you could say it means “courage”. But it also includes a number of other things, such as guts, bravery, ardour, dignity and -possibly- a bit of arrogance as well (in a good way J). I was lucky enough to work with Garmt as my first manager in my first job, and these are all the things that he taught me and the reasons why I look up to him. He is fearless to cope with all difficult situations and he never gives up, needless to say. But he also inspires others to “go for” things and see life in the same way; it sounds like a simple deal but, if you think about it, it’s not.

 

You could see all these attributes of Garmt reflecting on his “team”, the people that were there for dinner at Utrecht that night. Garmt was the one who wanted to say “thank you” for our support, but I think -eventually- it was a “thank you” from all of us to him, for all the inspiration he gives us. Garmt also supported back each one of us individually through this course of time and, probably, he was not even aware of that.

 

What I will keep from this event is that it was meaningful and it was fun. It was a sober way to say thank you for simply being there. The “piece-of-art” may have not been the prettiest thing in the world but it is clear evidence of how one man’s courage can touch so many different people’s lives and the reasons why we will always be thankful to him.

 

As a closure, when we say in Greece that someone has “tharros” it means quite something. If you search for the description on the Greek wikipedia, “tharros” translates as “the strength that someone has so that he can cope with dangerous situations, either without fear or by winning over this fear”. And I believe that this is what Garmt always does.

                                                                       Maria – Garmt’s team member J

 

Tharros

The first letter of Tharros

http://alsdantoch.com/wp-content/uploads/2016/02/ALS-dan-toch-logo2-300x138.png 0 0 garmt http://alsdantoch.com/wp-content/uploads/2016/02/ALS-dan-toch-logo2-300x138.png garmt2014-08-30 21:01:042014-08-30 21:01:04Tattoo Stories Part 1
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Full story

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ALS DAN TOCH - Laatste Boek - Garmt van Soest

ALS DAN TOCH

(LAATSTE BOEK)

Dit tweede – en laatste – boek schreef ik grotendeels afhankelijk van beademing en knipperend naar het toetsenbord van mijn computerscherm. Mijn lijf lam, maar mijn geest glashelder. Vol ophopende gedachten, want schrijven ging steeds moeizamer. Het gaat over uitrazen en neerstorten. Over leren genieten van het genot van anderen, naakt en weerloos betast en bepoteld worden, tot last zijn en me daar schuldig over voelen. Over de opbeurende lyrics van Nick Cave en Skunk Anansie. Over voortleven – in anderen.

Doodgaan is heel eenvoudig, een moment, iedereen kan het. Sterven is andere koek. Sterven is afronden, teruggeven voordat het uit je handen wordt gerukt, vrede bereiken. Maar het is ook een startpunt: je kunt pas echt leven als je goed kunt sterven. Dus STERF, GVD!

Overtuigd? Klik hier om ’m te kopen

ALS DAN TOCH

(EERSTE BOEK)

Het eerste boek van Garmt van Soest.

ALS DAN TOCH is de herziene, gereviseerde, van taalfouten ontdane en van meer dan honderd voetnoten, een voor- en nawoord, en een extra appendix voorziene bundeling van zijn blogposts.  Garmt vloekt, tiert, vecht, wint, zucht, huilt, breekt, hoort, ziet, voelt en deelt. In krachtige taal en rake bewoordingen vliegt het boek je haarscherp en loepzuiver naar de strot.

Dus hop. Met een paar luttele drukken op de knop, een makkie voor wie geen ALS heeft, ligt dat spiksplinternieuwe boek binnen twee dagen naar je te lonken op de deurmat.

Overtuigd? Klik hier om ’m te kopen

Klik en koop!

Geen fan van papier? Lees alles online, hier!
Ik heb het boek al en wil gewoon de extra content zien.

Voor wie is het boek?

Het boek is uiteraard voor wie gewoonweg geen genoeg krijgt van zijn blog, maar ook voor hen die onder een steen geleefd hebben en pas net op de hoogte zijn van het feit dat er überhaupt zoiets bestaat als de blog van Garmt. Het is ook voor een ieder die inmiddels een muisarm heeft ontwikkeld van het vele doorklikken op de website en natuurlijk voor de vrienden van de oude stempel, die het ouderwets geil vinden om een potje aan ècht papier te snuffelen tijdens het lezen.

ALS DAN TOCH is voor iedereen die Garmt en de stichting ALS een warm hart toedraagt. Want uiteraard gaat de uitgeversopbrengst van het boek naar de stichting ALS. Vooruit, en de royalties gaan naar dochter Zoë. Dus je doet met het kopen van het boek niet alleen jezelf of je moeder een groot plezier, maar maakt tegelijkertijd de wereld een klein beetje mooier.

Win-win.

Zijn beschrijvingen zijn scherp. Geestig. En eerlijk.

Volkskrant

“...wrange humor en stoere vechtlust…”

Algemeen Dagblad

"Een boek waar alles inzit."

Jeroen Pauw

dadablblblblrrrr, die!!!!!??!

Zoe L. van Soest

Join the fight

Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).

There are a few ways you can help out with a small donation:

232Km in 2016

Sponsor James Faust as he participates in 4 races in 4 countries to raise money toward research.

While I swim, bike, and run, you can show your support by donating.

Project Mine

The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.

Stichting ALS

Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.

Your idea here?

Are you swimming, cooking, cycling or walking against als? do you know someone who is a millionaire and wants to make money? Mail to info@qurit.org or press the button.

Sponsor James Faust
Visit Project Mine
Visit Stichting ALS
Contact Me

My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.

Follow the latest updates on ALS

Who?

Garmt van Soest

Garmt van Soest is a versatile manager with a strong background in business strategy and technology. He has advised Fortune 500 companies in the US and Europe since 2000. Garmt joined Accenture in 2010 as a Senior Manager in Strategy where he has been leading engagements in different industries, solving complex problems, advising on strategic direction setting and leading organizational transformation programs. Since his diagnosis with ALS his full-time job is to fight this disease with everything he and Accenture can muster.

Do you have ALS yourself? Click here!

Pers

Volkskrant

Ik ben niet gek of dronken, ik heb ALS

Trouw

Vechten tegen verbittering

Algemeen Dagblad

Garmt slaat keihard terug naar dodelijke ziekte ALS

PAUW

Garmt bij Jeroen Pauw

GIEL!

Garmt bij Giel Beelen

RabRadio

Garmt bij Paul Rabbering

Tot slot, een hoekje met zenboeddhistische dingen.

  • Een interview met ons clubblaadje, voorjaar 2014, waarin Maurice best goed mijn toenmalige gedachtes over Zen wist te beschrijven. Interview.
  • Een stukje voor hetzelfde clubblaadje, waarin ik wat losse gedachtes geef over Het Woord: Het Woord.
  • De beschrijving van mijn motivatie om zenbuddhist te worden: Jukai.
  • Een hapsnap verzameling van tekstjes en gedichten, alhier.
  • Ik gaf ooit een megalomaan praatje aan het einde van een rohatsu, in IZC De Noorderpoort. Bekijk het hier: Filmpje
  • Een stukje over het liefhebben van je lot: Amor Fati.

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