Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).
There are a few ways you can help out with a small donation:
- My dad is walking in de Nijmeegse Vierdaagse for ALS. Sponsor him here.
- Several of my friends are swimming the New Amsterdam City Swim, taking place 21/6/2015. Sponsor Lisanne or Antoinette!
- The biggest genome research project known to date was started by two ALS patients in collaboration with one of the top experts in the field of ALS and is my biggest bet that we’ll find the cause. Once that is known we at least know what we’re shooting for. The project is http://www.projectmine.com/ and you can like it on Facebook too: https://www.facebook.com/MineMakeityours
- Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.
My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.
If you need anything else or have any other suggestion, please drop a comment below and I’ll be happy to try and help you.